Thursday, January 10, 2013

Journal of Law, Medicine & Ethics Symposium Reexamines Research Ethics

The Winter 2012 issue of the Journal of Law, Medicine & Ethics features presented at a November 2011 Wake Forest University Center for Bioethics, Health, and Society presented a conference entitled "Research Ethics: Reexamining Key Concerns."

As the introduction to the symposium explains,

This symposium contains papers prepared by presenters at that conference and in response to a call for papers addressing the three conference foci: the legacy of Tuskegee; innovation, commercialization, and the goals of biotechnology research; and rethinking the IRB's role. Conference presenters with papers in this symposium are Giselle Corbie-Smith, Rebecca Dresser, Steven Joffe, James Jones, Jonathan Kahn, Alex John London, and Jeremy Sugarman.

Here is the table of contents for the symposium. I will comment on relevant items as time allows. As of posting, the DOI's below are not working; I think this is a problem with the journal, not my HTML.

INTRODUCTION: Research Ethics: Reexamining Key Concerns (pages 865–866)
Nancy M. P. King and Ana S. Iltis
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00715.x

Bad Blood Thirty Years Later: A Q&A with James H. Jones (pages 867–872)
James H. Jones and Nancy M. P. King
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00716.x

The Troubling Persistence of Race in Pharmacogenomics (pages 873–885)
Jonathan Kahn
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00717.x

Ethical Dimensions of Disparities in Depression Research and Treatment in the Pharmacogenomic Era (pages 886–903)
Lisa S. Parker and Valerie B. Satkoske
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00718.x

Practical Steps to Community Engaged Research: From Inputs to Outcomes (pages 904–914)
Malika Roman Isler and Giselle Corbie-Smith
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00719.x

Alive and Well: The Research Imperative (pages 915–921)
Rebecca Dresser
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00720.x

Revolution or Reform in Human Subjects Research Oversight (pages 922–929)
Steven Joffe
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00721.x

A Non-Paternalistic Model of Research Ethics and Oversight: Assessing the Benefits of Prospective Review (pages 930–944)
Alex John London
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00722.x

Questions Concerning the Clinical Translation of Cell-Based Interventions under an Innovation Pathway (pages 945–950)
Jeremy Sugarman
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00723.x

IRB Decision-Making with Imperfect Knowledge: A Framework for Evidence-Based Research Ethics Review (pages 951–969)
Emily E. Anderson and James M. DuBois
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00724.x

In Plain Sight: A Solution to a Fundamental Challenge in Human Research (pages 970–989)
Lois Shepherd and Margaret Foster Riley
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00725.x

More Than Cheating: Deception, IRB Shopping, and the Normative Legitimacy of IRBs (pages 990–996)
Ryan Spellecy and Thomas May
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00726.x

Rethinking Local Institutional Review Board (IRB) Review at State Health Departments: Implications for a Consolidated, Independent Public Health IRB (pages 997–1007)
David Perlman
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00727.x

What Research Ethics Should Learn from Genomics and Society Research: Lessons from the ELSI Congress of 2011 (pages 1008–1024)
Gail E. Henderson, Eric T. Juengst, Nancy M. P. King, Kristine Kuczynski and Marsha Michie
Article first published online: 3 JAN 2013 | DOI: 10.1111/j.1748-720X.2012.00728.x

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